Elijah is in
the process of undergoing psychological testing right now. He has been telling the
psychologist all about why he doesn’t like school. It was heartbreaking to hear
some of the things she said that he told her. He is in first grade, and he is
already very aware of the fact that he does not fit in and that people are
annoyed by him. He doesn’t understand why, because he has no awareness of the
deficit in his social skills, he just knows that for whatever reason, no one
wants to be his friend. He also feels like none of the teachers like him
because all he does is get in trouble. I know they are trying so hard with him.
I am not trying to blame them. I know he
is not easy to help. But, I can’t imagine what it must be like spending all
day, every day, surrounded by people you perceive as tired of dealing with you,
on top of the fact that you are already struggling. But, day in and day out he
has to go there. And he is expected not only to show up, but to do the work
that is asked of him and try to behave like everyone else. The bottom line is, he can’t. He lacks the
skills to be able to show up, sit in a classroom all day, do work, abide by
social rules, and fit in with everyone else. What some may see as a child who
is unwilling, I see a child who is unable. And, the mental health professionals
are seeing it also. In fact, his psychological
testing has now become more drawn out. We won’t even have a diagnosis now until
mid-December, and it was supposed to come next week. Why? Because he can’t even
focus long enough to complete the psychological testing! He is that distractible
and unable to process through and carry out what they are asking him to do. So now, we have another month until we can
even know what kind of help he qualifies for. I am finding all of this incredibly
disheartening. It has been really easy to just feel hopeless right now. But, I
am trying to focus on the positive, and the things I know are awesome about my
son. For example, last week, Elijah told
me that I am good at so many things, but what I am the very best at is being
his mom. He has no idea how much weight that incredibly sweet statement carries,
because being his mom is no easy task. In fact, being his mom is one of the hardest
things I have ever done. But, hearing him say I do it well makes it all worth
it. He went on to tell me that I am so good at making things, and that my Chicken
on the Beach is the best in the world. He said he loves that if I want something,
I just figure out how to make it with my Cricut and it’s better than buying it
anyway. He said that I am so smart. He was full of compliments. This are the moments
I live for, the ones that come in the middle of the hard times and remind me
that no matter how much trouble my son may be having with functioning at
school, he is still an amazing person with a beautiful heart. He appreciates me
and thinks I am great at being his mom, and that matters! And then, with no transition whatsoever, he
went right on into talking about how we are able to breathe oxygen because of trees.
And he spoke about it with as much enthusiasm as he had about his love for me. This is my son. He is a boy with so much love,
and so much passion. But, his brain isn’t quite wired like everyone else’s,
and this masks so many of his best qualities sometimes.
I have been trying to focus on the positive aspects of Elijah receiving his autism diagnosis. Besides the services that he can receive, I think one of the really important positives is that there is an explanation for certain behavior that previously could have come across to others as rude, defiant, or not taught proper social skills. When in reality, Elijah is a very sweet, kind person, he can come across as aloof, uninterested, and not caring about what someone else has to say. He actually does care, but his body language and response do not convey that he does. People who know him well know what a sweet, caring boy he is, but people who do not may never see that side of him and might assume the opposite. One time, we were in the checkout lane at the grocery store. The cashier tried to talk to him. He didn’t even turn his head in her direction at all. I think she thought he didn’t hear her, so then she tried again, but louder. This time, he looked, but shot her a rude...
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