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A very important lesson learned

  Today, I would like to talk about something that is extremely important that I have learned as an autism parent. It has changed everything about the way I respond to certain behavior, and made both my life and my son’s so much easier. That lesson I have learned is this- that it is absolutely essential to figure out what is causing a behavior before jumping to the conclusion that it needs to be punished. What we as adults view as difficult behavior is often a child’s response to overwhelming emotions and overwhelming stimuli. For so many years, when Elijah was not yet diagnosed, I tried to punish him for things that were simply a reaction to overstimulation or inability to express emotions. I had no idea that what I was doing was actually perpetuating the problem. Yet, I always wondered why it didn’t work. Now, it has become clear to me, and I am ashamed of myself for the ways I handled his behavior when I didn’t know.   You can punish someone over and over again for the ...
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If he has an idea, it's going to happen. He insists.

  Something that we deal with often with Elijah is that he becomes fixated on one idea at a time, and it can be very difficult to shift his focus on to anything else, including daily tasks that need to be done. Whatever the idea is, it is going to happen. He is going to make sure of that. And, if, it doesn't.... well, God help us all!  This is one of the reasons that the day to day can be so tough. He often comes up with these ideas while he is at school, then expects them to be carried out immediately, completely on his terms. Inflexibility is a huge issue with him. And anyone who regularly deals with a person who is often inflexible, for any reason, knows the exhaustion that comes along with that. So, anyway, I will be driving to pick him up from school, and in my mind, I am thinking of things that will need to be done that evening. After I get him, we need to pick up Owen, we need to head home and start practicing his spelling words, I need to make dinner, I need to make ...

I'm back. Things are better, but not always easy

I know it’s been a really long time since I have updated this blog. As with many things, the pandemic hit, and my usual routine was disrupted, so I got out of the habit of writing. I have been into what I consider to be a new normal for awhile, but just never took the time to pick it back up.   Lately the weight of Elijah’s autism feels as though it’s been weighing more heavily on me. I remembered writing about it was helpful. I decided it was time. I don’t want to spend much time recapping the past 10 months, because I want to write about what we are experiencing in the present, but because it has been so long, I need to tie up a few loose ends from where I left off before. So, as of last March, we were still waiting on the school psychological services department to respond to our submission of Elijah’s autism diagnosis, which we had submitted to them in December for 2019 when we received it. Everything shut down in March. We heard absolutely nothing the entire time the schools...

More signs that things were off

Today, I am continuing to go on describing the odd behaviors that led us to the autism diagnosis for Elijah. The first one today has to do with his odd relationship with cups.   There are two major issues with Elijah and cups. The first one is, Elijah will only drink out of one kind of cup at home. This behavior started around age four, so it was something else that wasn’t present as an early sign. Up until that point, he actually enjoyed getting new cups. Now, buying him a new cup would send him straight into a state of anxiety.   If we are at a restaurant, we are fine. He will drink out of their cups. If we are at someone else’s house, he will drink out of their cups. But, if we are at home, there is only one cup (that we have multiples of) that he will use.   It actually started as a different kind of cup, which is no longer available, so we were able to transition him to a new kind last year, but only one kind. They are these cheap, plastic Mario party favor cups...